__________________________________________________
Member Countries Associate Members
Argentina
Professional delegate:
Maria Del Valle Torrado, MD
Billinghurst 2349 2do. E (C1425DTU)
Buenos Aires
ARGENTINA
Tel: +54 11 483037
email: mtorrado@fibertel.com.ar
Parent delegate: Guillermo Jose Smith
Vuelta de Obligado 2647 - 5 A (C1428ADQ)
Buenos Aires,
ARGENTINA
Tel: +54 11 15-5937-0212/4788-2653
email: guillermo.smith@grupomost.com
PWS Association: email praderwilliar@gmail.com
Australia
Professional delegate: Dr. Ellie Smith,
Clinical Assoc. Professor
Senior Staff Specialist
Executive Officer, Dpt Cytogenetics
The Children's Hopsital at Westmead Clinical School
Cnr Hawkesbury Road & Hainsworth St, Westmead.
Locked Bag 4001, Westmead NSW 2145
AUSTRALIA
Tel.+61 29527 9795 (home) ,+ 61 2 9845 3237 (work),
email: ellies@nch.edu.au
Parent delegate:
Mandy Corkill jcorkill@bigpond.net.au
website: www.pws.org.au
Austria
Professional delegate:Dr. Barbara Utermann
Dr.-Karl-Ottstr.9A-6071-Aldrans
AUSTRIA
Tel:0043 10 392725
email: b.utermann@aon.at
President:Daniela Rodlauer:
email: h.rodlauer@aon.at
Parent delegate:Dr Monika Lederer
Holzgasse 15A-6020 Innsbruck
AUSTRIA
Tel: +43 664 3401602
email: moni.lederer@hotmail.com
website: http://www.prader-willi-syndrom.at/
elisabeth.schnedlitz@alphanova.at
adelheid.reicht@alphanova.at
Belgium
Professional delegate:Annick Vogels, M.D., Ph. D., C.M.E. KU Leuven,Herestraat 49B-3000 Belgium,
Tel: 32 16 345903, and 0474 68 04 07
email: annick.vogels@uzleuven.be
Parent delegate: Anna De Bruyckere
Prader Willi Vlaanderen vzw
Varenstraat 8
B 8301 Knokke-Heist
Belgium
0032 50 51 48 75
email:annadebru@hotmail.com
Brazil
Professional contact: Dr. Fernando Diniz:
City: São José do Rio PretoEstate: São PauloStreet: Av. Murchid Homsi, 107
Fone: 55 (17) 21396262
email: fernandoendocrino@hotmail.com
Associação Brasileira da Síndrome de Prader-Willi - SPW Brasil
Avenida Presidente Wilson, 231, Sala 1401 - Centro - Rio de Janeiro - RJ - CEP: 20.030-021
Phone # +55 21 3554-4562
E-mail: info@spwbrasil.com.br
Site: www.spwbrasil.com.br
Gabriella Lemmers Vieira President
E. gabriella.vieira@spwbrasil.com.br
FB: SPW Brasil
FB: Grupo de Apoio aos Pais
Canada
Parent delegate: Tanya Johnson
2354 Robin Drive, Mississauga, ON L5K1S9
phone: +905.339.992
website: http://www.fpwr.ca
Chile
Professional delegate: Dra Fanny Cortes
Monsalve, Lo Fontecilla 441Las Condes, Chile
Tel: +56.2.678.1478
Fax: +56.2.215.2582
email: fcortes@clinicalascondes.cl
Parent Delegate: Amalia Balart Salamero
Av. Cristóbal Colón 4484 Depto. 31
Las Condes, Santiago,
Chile
email: info@prader-willi.cl
website: http://www.prader-willi.cl/
Czech Republic
Professional delegate:Pavel Bircák
Krabcice75, Krabcice 411 87 Czech Republic
mob. +420 731 788487
Parent delegate: Ing.Hana Verichová
Na stráni 4, 101 00 Prague 10
Czech Republic, tel. +420 271 742 380
Denmark
Professional delegate: Susanne Blichfeldt MD,
The Danish PWS Association,Kildehusvej 12,
DK-4000 Roskilde, Denmark
Tel: +45 4637 3204, +45 4637 3203
email: s.blichfeldt@dadinet.dk
Parent delegate:Jytte Helgogaard
Heibergs Have 67DK 4300 Holbaek
Denmark
email: jvttehelgogaard@tdcadsl.dk
website: http://www.prader-willi.dk/
Caregiver delegate: Djanik Gade Andersen
Noerre Alle 3, DK 8930 Randers NOE
Tel: +45 51501288email: ltgade(at)webspeed.dk
Estonia
Professional delegate: Vallo Tillmann, MD, PhD,
Professor of Paediatrics, Director and Chairman,
Tartu University Children's Hospital
Lunini 6, 51014 Tartu, ESTONIA
Phone:+372 7 319 500 (direct)+372 7 319 501
(secretary Liidia Koik)
Fax: + 372 7 319 503
Parent delegate: Renata Soukand
Prader-Willi Sundroomi Uhing MTUTontsu kinnistu, Umbusi kulaPoltsamaa valdJogeva maakond 48026ESTONIA
Tel: +37 250 22394, +37 27121234
email: renata@folklore.ee
Finland
Professional delegate: Dr. Risto Lapatto
HUCH Hospital for children and adolescents
University of Helsinki,P.O.Box 281,FIN-00029 HUS, Finland
tel +358-50-4286413
Parent delegate: Eneken Plats,
website: http://www.pws-yhdistys.fi/
France
Professional delegate: Pr. Maïthé Tauber
Unité d'Endocrinologie, maladies osseuses,Génétique et gynécologie médicale,
Hôpital des Enfants,
330 av de Grande Bretagne TSA 70034, 31059 Toulouse
Cedex 9
Tel 33 5 34 55 85 55 51,
Fax 33 5 34 55 85 55 58
Parent delegate:Francois Besnier
39 rue Felibien 44000 Nantes, France
Tel: +33 2 40478249
email: f.besnier@wanadoo.fr
Germany
Professional delegate:Dr Constanze Lammer
Kinderklinik St Bernward Krankenhaus Treibestr. 9D-31134 Hildesheim, Germany
phone: +49 512.1905704
email: constanze.laemmer@t-online.de
Parent delegate: Monika Fuhrmann,
Weiherstr. 23, D-68259 Mannheim, Germany
Tel: +49 621 799 2193
email: monikafuhrmann@prader-willi.de
email: mm.fuhr@web.de
India
Professional contact: Dr P. Raghupathy BSc, MD (Paed) DCH, FRCP
Senior Paediatric Endocrinologist
Sagar Hospitals # 44/54
30th Cross
Tilaknagar
Jayanagar Ext
Bangalore 560 041
India
tel: +91 80 2244 2800
Fax: +91 80 2244 2700
email: drp.raghupathy@gmail.com
Parent contact: Shikha Metharamani
16\1,Loudon Street, 3D Loudon Park
Kolkata-700 017 W.Bengal.India
email: shikha_harlalka@hotmail.com
Tel. +91-33-22472765,
cell. phone: +91-9831008191
Ireland
Dr Judith Meehan, MD, MA, MB Bch BAO, DCH, FRCPI
Assistant Professor,
Department of Paediatrics,
Trinity Centre for Health Sciences,
National Children's Hospital,
Tallaght,
Dublin 24
Email: jmeehan@tcd.ie
Tel: +353 1 8963771
Parent contact: Ann O'Neill
Monagoul, Ballymacoda, Co. Cork, Ireland
Tel: + 353 87 2522832
website: www.pwsai.ie
Email: annosmile1@hotmail.com
Caregiver contact:
Laura Keane
Managing Director, Resilience Care
Ballymaley Business Park, Ballymaley, Ennis, Co Clare, V95 ECF4
Tel: + 353 65 672 2875
PWS Association
PWSAI
Carmichael Centre
Carmichael House
North Brunswick Street
Dublin 7
Ireland
Current Chair: Anthony Carr
Israel
Professional delegate: Varda Gross-Tsur MD.,
POB 2210, Mevaseret Zion 90805,Israel
Tel: +972 2 5341193, Fax: +972 2 6422481,
Email: varda.gross@gmail.com
Parent delegate: Moshe Kravitz
PWS Association
Italy
Graziano Grugni, MD
Division of Auxology
S. Giuseppe Hospital, Research Institute
Italian Auxological Institute
tel. +39-0323-514247
fax +39-0323-514230
Parent delegate: Valentino Colosso
Via Nicodemi 26, 31015 Conegliano (TV)
Tel. +39 0438-34491 (home), +39 0438-914351(work),
Mobile +39 349-5092188
Email: vcolosso@gmail.com
Japan
Yoshiro Kato
Kansai University of Welfare Sciences
Faculty of Health Sciences for Welfare
Zip code : 582-0026 Osaka-fu, Japan
Tel&Fax : +81 72-978-0088
E-mail : gfa03452@nifty.com
Parent delegate: Kazue Karita
Sanjo-cho 33-11, Asiya-city, Hyogo-prefecture,
659-0087 Japan,
Tel. + 81 797-38-3087
website: www.pwsa-japan.org
email: kazuekarita0729@gmail.com
Caregiver delegate: Satoko Nakagomi
email: snakagomi@yamanashi.ac.jp
Mexico
Professional delegate:Dra. Gloria Queipo García,
e-mail: gqueipo@nanolab.com.mx
Parent delegate: Josefina Pérez Rodríguez
Fundación María José, A.C.
Avenida Cuauhtémoc no. 910 Col. Centro
Pachuca, Hidalgo. México C.p. 42000
Tel.: Oficina 7712121818, Celular 7711292799
Email: contacto@fundacionmariajose.org.mx
E-mail: josefinapr@hotmail.com
The Netherlands
Professional delegate: Prof. Dr. Leopold Curfs
University Maastricht / Academic Hospital Maastricht,
Department Clinical Genetics
P.O. Box 1475, 6201 BL Maastricht
The Netherlands, Tel. +31 43 3877850 / +31 43 38775899,
email: leopold.curfs@maastrichtuniversity.nl
Parent delegate: Martijn Bollen
martijn@praderwillisyndroom.nl
Stichting Patiëntenorganisatie Prader-Willi Syndroom Nederland
Rembrandttoren (35e verdieping) │Amstelplein 1 │1096 HA Amsterdam│Nederland│
Mob: +31 6 40542551
e-mail: martijn@praderwillisyndroom.nl
New Zealand
Professional Delegate: Dr Paul Hofman, MBChB, FRACP
Senior Lecturer in Paediatrics
The Liggins Institute, University of Auckland
Private Bag 92019, AUCKLAND
Telephone 64 9 373 7599 ext. 86476
Fax 64 9 373 7497
email: p.hofman@auckland.ac.nz
Parent Delegate: Karen O'Reilly
18 Forest Glen
Orewa
North Auckland 0931
New Zealand
website: www.pwsa.org.nz
Caregiver Delegate: Julie-Anne Quinney
Julie-Anne.Quinney@spectrumcare.org.nz
Norway
Professional delegate: Kai Fredrik Rabben
Frambu, Sandbakkveien 18,N-1404 Siggerud,
Norway
Tel.: +47 64 85 60 48, Mobile: +47 90 11 18 19
email: kra@frambu.no
Parent delegate: Ragnhild Øverland Arnesen
Kollbulia 22, N-5124 Morvik, Norway
Tel: +47 5518 4842, mob. +47480 96 709
ragnhild.arnesen@prader-willis.no
website: www.praderwilli.no
Poland
Professional delegate: Ewa Obersztyn MD,PhD,
Department of Medical Genetics,
National Institute of Mother and Child,
01-211 Warsaw, ul. Kasprzaka 17a,
Poland
Tel: +48 22 32 77 490,
Fax: +48 22 32 77 152
email: eobersztyn@imid.med.pl
Parent delegate: Maria Libura
02-132 Warsaw, ul. Baleya 4/11 Poland
Tel +48 22 659 87 78,
Prader-Willi Association Poland ul
Jasnorzewskiej 9/1001-863 Warsaw Poland'
President: Maria Libura
Romania
Professional delegate: Szekely Aurelia,
Endocrinologist
Zalau, str. Oborului, nr.10,
Romania,
tel: +40 260/662672, mobile: +40 0742070123,
Parent delegate: Tibi Dan
Str. Simion Barnutiu, nr.97, bl. SB 88, apt.14Loc. Zalau, Judet Salaj, Cod. 450129 Romania
Tel: + 40 60/616585 or +40 726 248707.
website: www.apwromania.ro
email: tiberiudan1@yahoo.com
Slovakia
Professional delgate: Doctor Maria Kusekova
Lomonosovova street 38,040 01 Kosice, Slovakia
phone: +421 903 625312, *421 55 6404120
Parent Delegate: Maria BenedekovaAlderova,
12,040 22 Kosice, Slovakia
Tel. +421 905 165422
email: benedekova@pwsyndrom.sk
All office enquiries:
Ludmila Schenkova
website: www.pwsyndrom.sk
South Africa
Professional delegate: Dr Engela M Honey,
Department of Human Genetics,
University of Pretoria,
PO Box 20340001
PRETORIA,
SOUTH AFRICA
Tel: +27 82 5795315
email: engela.honey@up.ac.za
Parent delegate:
Karin Clarke
5 Clement Way
Bergvliet, Cape Town 7945
SOUTH AFRICA
Tel: +27 83 634 9825
email: karin@discoverymail.co.za
website: www.praderwilli.org.za
South Korea
Professional delegate: Han-Wook Yoo, M.D., Ph.D.,
Professor & Chairman,
Department of Pediatrics,Asan Medical Center,
University of Ulsan College of Medicine,
388-1 Pungnap-Dong, Songpa-Gu,Seoul, 138-736, Korea
Fax:82-2-473-3725,
Tel:82-2-3010-3374,
email: hwyoogene@gmail.com
Parent delegate:
Ms. Jung-Yun, Seo
6dong-201ho, hedoji-ro 107, songdo-dong, yeonsu-gu, incheon-si, Korea (zip: 406-743)
E-mail: junyun1004@nate.com
Phone: +82-10-9757-7689
Spain
Professional Delegate: Dra. Mª José Rivero Martín
Jefa de la Sección de Endocrinología Pediátrica del Hospital de Fuenlabrada
C/Camino del Molino, 2
28942 Fuenlabrada (Madrid)
Email: mrivero.hflr@salud.madrid.org
Parent Contact: Begoña García
Email: juntadirectiva@aespw.org
Caregiver Delegate: Aurora Rustarazo
Email: praderwillisindrome@gmail.com
ASOCIACIÓN ESPAÑOLA SÍNDROME DE PRADER WILLI (AESPW)
C/Rio Ter, 2
28913 Leganés (Madrid)
Tel: +34 91 533 68 29
Email: praderwillisindrome@gmail.com
Email: info@aespw.org
Sweden
Professional delegate: Dr Charlotte Hoybye
Assoc Professsor
Dept of Endocrinology Metabolism & Diabetology
KJarolinska University Hospital
S-171 76 Stockholm
Sweden
Tel: 46 851 775379
email: charlotte.hoybye@karolinska.se
Parent delegate:
Marie Solin
Umeå
Sweden
Tel: 0046 73 84 66 308
Website: www.prader-willi.se
Caregiver delegate: Lisa Boman
Ljusnevagen, 1B S128 48
Bagarmossen
Sweden
Tel: 0046 8 6001053
email: Lisa.Boman@telia.com
Switzerland
Professional delegate: Udo Meinhardt,
MDPEZZ Center for paediatric endocrinology Zürich
Möhrlistrasse 69CH-8006 Zürich
Switzerland
website: www.Prader-Willi.ch
Parent Delegate: Deborah Barks
Eigerstrasse 10
CH - 5453 Remetschwil
Switzerland
056-496 08 85
swiss-parent-rep@prader-willi.ch
Caregiver Delegate: Michael Pethe,
ARGO Wohnheim Surava,
Valetta 18, 7472 Surava GR,
Switzerland.
Phone: 0041 81 637 03 87.
Taiwan
Professional delegate: Dr. Shuan-Pei Lin,
Division of Genetics, Dept. of Pediatrics,
Mc Kay Memorial Hospital
92 Chung-San N. Road, Sec 2,
Taipei, Taiwan,
Tel:+886 2 2543 3585 / 3089
Fax:+886 2 2543 3642
email: zsplin@ms2mmh.org.tw
Parent delegate: Leo Liu
3F.,No.3, Lane 357,
Songjiang Rd.,
Jhongshan District,
Taipei City 104,
Taiwan (R.O.C.)
Tel: +886-2-25175002,
Fax +886-2-25175279
website: www.pwsa.org.tw
United Kingdom (England, Scotland, Wales)
Professional delegate: Prof. AJ Holland,
2nd Floor, Douglas House,
18b Trumpington Road,
Cambridge CB2 2AH,UK
Tel: +44 1223 746112,
Fax: +44 1223 746122
email ajh1008@medschl.cam.ac.uk
Parent delegate: Jackie Waters
email: jackiewaters@virginmedia.com
Caregiver Delegate: Gayle Benet
23 Boscobel Road
St Leonards on Sea
East Sussex
TN38 OLX
Tel: (01424 421684
email: gayle.benet@newdirections.gb.com
United States of America
Professional delegate:
Daniel J. Driscoll, M.D., Ph.D., Professor of Pediatrics and Genetics
Hayward Professor of Genetics Research
Box 100296, University of Florida College of Medicine, Gainesville, FL 32610-0296 USA
telephone: 352-392-4104 - fax: 352-392-4049
E-mail: driscdj@peds.ufl.edu
http://www.mgm.ufl.edu/faculty/Ddriscoll.htm
Parent delegate: Joan Gardner
4710 Bouleau RoadWhite Bear Lake,
MN 55110-3355Tel: +001 651 4296441
email: jlgmn@me.com
website: www.pwsausa.org
Albania
Professional contact: Lindita Grimci MD. PHD.
Pediatric Endocrinologist.University Hospital Center "Mother Teresa"
Pediatric Deparment. Rd. DibrësNr. 370, Tiranë, Albania.
Home: Bul. "Zhan D'Ark", Kulla 1,
tel. 00355 (4) 265 534,Mobile 00355 (0) 68 2066 584,
email: lgrimci@hotmail.com
Algeria
Professional contact: Dr. Karima Hamdani
Chemin Sidi Yahia cité des 20 logts Bt1 N°1 Bir Mourad Rais Algiers Algeria
Tel. :+ 213 21 56 26 59
email: karimah2001dz@yahoo.fr
Armenia
Professional delegate: Albert Matevosyan M.D., Ph.D.
Professor, Head of the Department of Medical Genetics,
Yerevan State Medical University
M.Heratsi,
Head of the Republic Center of Medical Genetics,
President of the "Neurohereditary Diseases" Charity Association
Address: 9a, Parpetsi st. apt. 6. "NHD"ChA" NGO,
Yerevan, Armenia, 375002
Tel.: +37410 532480, +37491 212890 (mobil)
Fax.: +37410 535424
email:matev2007@yahoo.com
Australia -
PWS Better Living Foundation Ltd
Managing Director:, James O'Brien
PO Box 377,
Kew
Victoria, Australia, 3101.
Ph +61439853539
email: jamesob@bigpond.com
Bahrain
Professional contact: Dr Haya Alkhayyat, MD, DCH, MSc, CABP, FRCPCH
Consultant Paediatrician and Endocrinologist,
Bahrain Defence Force Hospital,
Kingdom of Bahrain
Tel: +973 39675588
Email: hayaalkhayyat@hotmail.com
Bangladesh
Professional contact: Dr Fauzia Moshin
Apt no. 2B House #40
Rd#21 Block B, Banani
1213 Dhaka
Bangladesh
ph: 880.2.8855032
email: fauzia_mohsin@yahoo.com
Belarus
Professional contact: Dr Natalia Akulevich, MD, PhD
Endocrinologist-Pediatrician
State Center of Medical Rehabilitation
Department of Pediatricis
Makayonka St, 17
220023 Mink
Belarus
Tel: +375 172370779
Fax: +375 1723700769
email: tashagmd@yahoo.com
Bolivia
Professional contact: Dr Ramiro Alvarado
Neurosurgeon
P O Box 1701
La Paz
Bolivia
Tel: +591 22 713511 (home)
+591 22 423708 (work)
email: ralvarado@acelerate.com
Parent contact: Luz Elizabeth Tejada Velez
Casilla N. 6861
La Paz
Bolibia
Tel. domicilio: +591 22 797045
celular: +591 73565220
email: eliteve19972@hotmail.com
Botswana
Professiona contact: Dipesalema Joel MBBChBAO, B Med Sc(NUI), MRCP Ireland(Paeds), Paediatrician/Pediatric Endocrinologist, Associate Director-Paediatric TB and Endocrinology Services
Botswana-Baylor Children’s Clinical Centre of Excellence, Private Bag BR129 | Plot 1836
Hospital Way, Princess Marina Hospital
Gaborone, Botswana
Telephone; +2673190083, Fax; +2673190079
Mobile Phone; +26772510370
E-mail: apsalm@yahoo.com
Boznia Herzegovina
Professional contact: Alma Toromanovic, MD
Division of Endocrinology,
Department of Pediatrics,University Clinical Center TuzlaTrnovac bb Tuzla 75000
Bosnia and HerzegovinaTel. +387 35 255 132,
Fax: + 387 35 303 700
email: almatoromanovic@bih.net.ba
Bulgaria
Prof. Dr. Violeta Iotova, MD, PhD
Pediatric Endocrinologist
First Paediatric Clinic - Head
University Hospital "St. Marina"
1 "Hr. Smirneneski" Blvd.
Varna 9010, Bulgaria
Tel./Fax: +359 52 302 889
Parent contact: Stanimir Tsonev
7, Raina Knayginya Str. fl. 4 , ap. 11Sofia - 1309, Bulgaria
home + 35924808244 , mob. +359888642472
email: stzonev02@abv.bg :
China
Chinese Prader-Willi Syndrome Care & Support Center
Hangzhou,
Zhengjiang, China
Email: xiaopangweiliPWS@163.com
Home-page: www.xpwilli.org
Professional contact: Dr. Chaochun Zou,
Dept.of Child Health Care
The CHildren's Hospital
Zhejiang University School of Medicine
No. 3333 Binsheng Road, Hangzhou
Zhejiang 310051, China
E-mail: 15067123060@163.com
Parent contact：Xiaojing Lin,
The Chinese Prader-Willi Syndrome Care & Support Center
Liuhe Road, Hangzhou
Zhejiang 310023, China
Mobile:+86-13388558777
E-mail: 373884119@qq.com
Colombia
Professional contact: Dra. Paola Duran MDCENPA (Centro Endocrino Pediatrico)Calle 97 N 10-39 consultorio 207Bogotà, Colombia, Tel. (571) 634 7282E-mail: cen.pa@hotmail.com
Parent contact: Janneth Africano Moreno
Finca el Pantanito
Vereda Santa Rosa
Municipio de Lebrija
Santander
Colombia
email: jannethafricano@hotmail.com
Costa Rica
Parent contact: Kensy Jimenez
Apartado postal 10844-1000 San Jose Alajuelita
Calle Cochea de la ultima parada
300 metros sur-oeste frente a la torre del ice
porton verde
tel: 8312 6116; 8357 8272
email: hckenja@gmail.com
Croatia
Professional contact: Tatjana Prizi Jakovac
"ERF" Borongajska cesta 83f
10000 Zagreb, Croatia
Mobile: +385 91 5011 240
email: tatjana.prizi-jakovac@vz.htnet.hr
Parent contact: Ivka Cop
Bukovacka 158, 10000 Zagreb, Croatia
Tel. +385 91 5190661,
Cuba
Professional contact: Dr. Loisel Bello Ulloa
Especialista en neumología,
Hospital Provincial docente Antonio Luaces Iraola
Calle Cuba 311 % 1 y 2 Vista Alegre
Municipio Ciego de Avila, Provincia Ciego de Ávila, Cuba
Teléfono: +53 133 20 1082, Mobile +53 54041398,
Parent contact: Marlen Román García
Licenciada en Educación Especial, Pedagoga clínica,
Centro de Orientación y Diagnóstico Ciego de Ávila,
Calle Cuba 311 % 1 y 2 Vista Alegre, Municipio Ciego de Ávila,
Provincia Ciego de Ávila, Cuba
Teléfono: +53 133 20 1082
Dominican Republic
Professional contact: Dra Cristina Lopez Diaz
Neurologo-Neuropediatra
Grupo Medico Naco
C/ Fantino Falco No.12
Suite No.2, 2do piso
Esanche Naco
Santo Domingo
Rep Dom
Tel: +809 685 5544
cel: +809 759 8800
email crisiopezdiaz@hotmail.com
Parent contact: Julia Bonelly
Continental Express, SA 5171
P O Box 25296
Miami FLA 33102, USA
Tel: +1 809 582 3417
email: jbonnelly@navierasbr.com
Ecuador
Parent contact:
Parent contact: Armando Castellanos
Reina Victoria 17-37 y La Niña
Quito-Ecuador, Telefono: (593 2) 2683 647
Egypt
Parent contact: Prof Dr Mohd Anwar Khalaf
Magrabi Hospital & Centers
El Sayeda Nafisa Square
124 Manial El Roda
Cairo 11553
Egypt
Mobile (202) 0100 1787812
El Salvador
Professional contact: Dr Billy Fuentes
3rd Calle Poniente y 79 Av Norte
Local No. 110
Condominio Las Alquerias
Colonia Escalon
San Salvador
El Salvador
Centro America
tel (work) +503 2744936
Parent contact: Mario A. Mendez
Colonia Portico SanAntonio #13
A Calle San Antonio Agad
San Salvador
El Salvador
Centro America
Tel: +503 284 4032
Fundación Prader Willi (FSPW)
C/ Arturo Soria 263 B, Bajo B
28033 Madrid, Spain
Tel: +34 914 352 250 / +34 620 082 172
Professional Delegate:
Dra Raquel Corripio Collado
Médico Senior Coordinador de la Unidad de Endocrinología Pediátrica. Servicio de Pediatría. Parc Taulí Sabadell. Hospital Universitario. UAB.
Parc Tauli 1
08208 Sabadell, Spain
Tel: +34 93 723 10 10 ext 21005
Parent Delegate:
Fernando Briones Alonso
Caregivers Delegate:
Marta Fernández López
Psicóloga educativa
Georgia
Professional contact: Prof. David Metreveli
Vice President of Georgian Society of Endocrinology,
Assoc. Professor of Tbilisi State Medical University,
Director of David Metreveli Medical Centre Ltd
,9 Tsinandali St. Tbilisi,
Georgia, 0144Tel: + 995 32 2190 007, (work)
+ 995 577 411 366 (Mob)
Fax: + 995 32 2773 348
Professional contact:
Ekaterine Kvaratskhelia MD, PhD
Endocrinolgist, Pediatric Endocrinologist
David Metreveli Medical Center, "DMMC"Georgian Foundation for Genetic and Rare Diseases,
"GeRaD" Tbilisi,
Georgia Tsinadali St, Tbilisi,
0144, Georgia
Tel: +995599435363 (Mob.)
Fax: +99532 277 60 67
Parent & Professional delegate: Dr Ana Iashvili
Ppediatrician. the Consultant of medical TV Channel of "TV Pulse" in questions of the rare diseases
Tell: +995 322 965 809
Mob: + 995 577 37 87 59
email: ano.iashvili@yahoo.com
Tel: + 995 557969112
email: ano.iashvili@yahoo.com
Greece
Professional delegate: As. Professor Dr. Christina Kanaka-Gantenbein, MD.,
Pediatriciac Endocrinology and Diabetes
1st Department of Paediatrics,
University of Athens52 Kifissias Ave., 115 26 Athens, Greece
Tel. +30 1 777 9909,
email: ganten@hol.gr
Parent delegate: Vicky Biliou:
Guatemala
Professional contact: Licda. Q.B. Mayra Urízar, Laboratorio Bioanalisis 18 Av. 4-50zona 3. Quetzaltenango, Guatemala. C.A.
tel +502-77674597
celular +502 54070806.
Parent delegate: Luis Barrios Izaguirre
6a. calle "C" 4A-25 zona 9. Los Cerezos
IQuetzaltenango. Guatemala. C.A
.tel +502-77677202 cel +502-55060539
e-mail: luisitobarrios@gmail.com
Honduras
Professional contact: Dr Ramon H. Alvarenga C,
Hospital Infantil Privado
Bario La Granja, frente a centro medicl hondurefio
Comayaguela
F.M. Honduras
Centroamerica
Phone: (504) 2239 0484
email: ramonalvarenga0@gmail.com
Parent contact: Maria Del Rosario Murillo Avilez,
Residencial San Carlos, Bloque 21 casa 08,
Choloma, Cortes, Honduras
Celular; +504 3228 9687.
E-mail: rosariomurillosps@gmail.com
Hong Kong
Professional and parent contact:
Dr Chim Tsui Shan,
Shirley Shop C151, 2/F,Kwai Chung Plaza,Kwai Fong, NT,Hong Kong
Phone: 852-96018098
E-mail: hammerrocksc@gmail.com
Parent contact; Rayon Wan
email: rayonwan3@gmail.com
Phone: +852 6477 1009
Hungary
Dr Dóra Török MD, PhD
Semmelweis Universtiy, 2nd Dept of PediatricsTuzolto u. 7-9 Budapest, 1094, Hungary
Phone: +36 20 825 9342
email: torokdora@gmail.com
Parent contact: Zsuzsanna Szalay
Hungary, 2053, Herceghalom,
Arany János u. 25.Phone: +36 70 5774759,
email: szalay@pwshungary.hu
Iceland
Professional contact: Ingólfur Einarsson,
barnalæknir / Paediatrician, MRCPCH
Sérfræðingur í fötlunum barna / PGDip (Paediatric Neurodisability)
Greiningar- og ráðgjafarstöð ríkisins / The State Diagnostic and Counselling Centre
Digranesvegi 5IS-200 KopavogiÍsland / Iceland
Sími 510-8400 / Tel. +354 510-8400
Fax 510-8401 / Fax. +354 510-8401
http://www.greining.is/english/
Indonesia
Professional contact: Prof. Dr Jose RL Batubara, PhD, SpAK
Pediatric Dept
University of Indonesia
JI Salemba Raya no.6
Jakata 10340
Indonesia
Tel: +622 13100669
+628 168 14707
email: josebatubara@gmail.com
Iran
Professional contact: Dr Aria Setoodeh,
Children's Medical Center,
Dr Gharib Ave
Tehran
IRAN
Cellphone: +98 912 172 3561
email: arset59@yahoo.com
Jamaica
Professional contact: Dr Pauline Williams-Green
Family Physician
Linstead,
St Catherine
Jamaica
Cell: 8555934
email: paulinemeg@gmail.com
Jordan
Abeer Alassaf, MD,
Assistant Professor of Pediatric Endocrinology,
Assistant Dean for Students and Graduates Affairs,
The Faculty of Medicine/ THe University of Jordan,
dr_abeerassaf@hotmail.com
Kazakhistan
Parent contact: Askar Sadykov Turtubekovich
23 Serikbaev st.146070010 - Ust'-Kamenogorsk, Kazakhstan
Tel. 8-10-7232-540647,
Mobile +7-777-5100902
email: askar_tau@yahoo.com
Kenya
Professional delegate:Dr Paul Laigong, MBCHB, MMED
Paediatric EndocrinologistGertrude's Children's Hospital
P O Box 460-00202Nairobi, Kenya
Tel: +254203763372 or +254207206000
email: drlaigongp(at)yahoo.com
email: plaigong(at)gerties.org
Kosovo
Professional delegate: Dr Vjosa Muliqi Koton
Pediatric Diabetologist
University Clinical Center of Kosovo
Dept of Endocrinology
Rrethi i QKUK p.n.
Prishtina 10000
Kosovo
Tel: +377 441 85637
email: vjosakotori@hotmail.com
Kuwait
Professional Delegate:
Dr. Ibrahim Elsayed Abdalla
Consultant Endocrinology and Diabetes
American Board , Cornell University, USA
Inaya Medical Center, Kuwait
Address: Kuwait
Salmyia 22095
PO Box: 9470
Tel: +965-973-72-789
Mail: abdalla788@hotmail.com
Parent Delegate:
Michelle Bosse
Latvia
Professional delegate: Dr. Iveta Dzivite
Head of Children's Endocrinology
Centre of Latvia, 45, Vienibas gatve,
Riga Latvia LV - 1004
tel: + 3717064406,
tel/fax: +371 7064436
email: dzivite@bkus.lb
Lebanon
Professional delegate: Pascale Karam, MD
Director of Outpatient Department
Dept of Pediatrics & Adolescent Medicine
American University of Beirut-Medical Centre
Riad El Solh
Beirut 1107 2020
Lebanon
Tel: 961 1 350000 ext 7950/59 5516
Fax: 961.1.370781
email: pk06@aub.edu.lb
Parent Delegate: Rita Sfeir
Adonis- Rue Rebaya
Tilai Adonis Building
First Floor
Kesrouan
Lebanon
Tel: 00 961 9 224133
Fax 00 961 9 224133
email: ritasfeir88@gmail.com
Libya
Professional delegate: Nadia Omar Alghazir
Paediatric endocrinologist
P.O box : 7932 Libya Furnaj - Tripoli
Telephone number : +218913221257
email: n.alghazir@yahoo.com
Lithuania
Professional contact: Dr. Natalija Smetanina
Department of Pediatric Endocrinology
Kaunas University Hospital,
Eiveniu str. 2, Kaunas, LT-50009, Lithuania
Mobile +370-684-01070
E-Mail: natalija.smetanina@gmail.com
Parent contact: Vilma Rute
Kretingos g. 14-9, Palanga LT-00132
Lithuania/ Lietuva, Tel. +370 616 14151
E-mail: rute.vilma@gmail.com
Macedonia
Professional delegate: Dr Elena Sukarova Angelovska
Dept of Endocrinology and Genetics
Paediatric Clinic,
Vodnjanska 17
Skopje
Macedonia
tel: +389 70 358582
email: esukarova@yahoo.com
Parent delegate: Kostoska Valentina
Sopiste No.54a
1000 Skopje
Macedonia
email: zujica_filipova@hotmail.com
email: emanuela-mak@hotmail.com
Malaysia
Professional delegate: Dr. Yew Sing Choy
Consultant Geneticist/Metabolic Specialist/Paediatrician
Prince Cout Medical Centre
39 Jalan Kia Peng
50450 Kuala Lumpur
Malasia
Fax: 603-21600780
Phone: 603 21600000
and
Subang Jaya Medical Centre
1.Jalan SS12/1a
47500 Subang Jaya
Selangor
Malaysia
Fax: 603 56391209
Phone: 603 5639 1212
and
National Heart Institute
145 Jalan Tun Razak
50400 Kuala Lumpur
Fax: 603 269 46478
email: yewsing.choy@princecourt.com
Parent delegate: Norliza Mohd Din & Azhar
39 Jalan Anggerik Doritis 31/126
Kota Kemuning 40460 Shah Alam
Selangor
Malaysia
Tel: 016205832, 0123395232
email: liza@paradym.com.my
email: leezamdin@gmail.com
Malta
Professional delegate: Dr John Torpiano
Dept of Paediatrics
Mater Dei Hospital
Tal-Qroqq Msida MSD 2090
Malta
email: john.g.torpiano@govt.mt
Parent delegates:
Patrick and Danielle Mangion
+35699858252
Moldavia
Professional delegate: Dr. Victoria Sacara
Apt. 144, 21 Dacha str.,
Kishinev, Moldova MD 2038,
Tel: +373 719670,
email: vsacara@mednet.md
Parent delegate: Arpenti Diana
Str. Nicolae Milescu Spataru 3 ap. 137
Chisinau, 2044,
Republica Moldova
email: diana_arpenti@yahoo.com
Morocco
Professional delegate: Prof. Ahmed Gaouzi
Departments of Paediatrics,
Unit of Paediatric Endocrinology,
Children's University Hospital Rabat
Office: Avenue Ibn Rochd
B.P. 6542 Rabat -Institut
Home Address: app n°9 Imm.
Chifaa ,
Bd Al arar Hay Riad Rabat
Morocco
Tel. 037 67 13 25 (work),
Tel. (212) 037 71 26 87 (home),
email a.gaouzi@um5s.net.ma
Parent Delegate:
Asmaa Chakkour (sibling)
email: asmaa.chakkour93@gmail.com
Nepal
Professional delegate: Dr Ansumali Joshi
Consultant Endocrinologist
Alka Hospital
Jawalakhei
Lalitpur
Nepal
P O Box 24255
Fax: 00977-5547196
Tel: 0097 1.5553333
email: ansujoshi@yahoo.com
Mobile: 0097 5547196
Nicaragua
Parent delegate: Alicia Rodriguez
13756 SW 48 ST.,
Miami, Florida 33175:
USA,
Mobile +1 305-318-6087
email: alicia_ni@yahoo.com
Nigeria
Professional delegate: Yarhere Iroro E.
Dept of Paediatrics and Child Health
Universityh of Port Harcourt Teaching Hospital
PMB 6173
Port Harcourt
Rivers State
Nigeria
Tel: +234 706798148
+234 708 7417677
email: iroroy91@yahoo.com
Oman, Sultanate of
Parent Delegate: Mansoor Hamed
email: mansoor_hamed(at)hotmail.com
Palestine Territory
Professional delegate: Dr Hasan Eideh
Paediatric Endocrinologist
Palestinian Medical Complex
Ramallah
Tel: 009 705 9871 7140
Fax: 009 702295 1234
email: hasan_eideh@yahoo.com
Pakistan
Professional delegate: Dr. Jamal Raza
Professor of Paediatrics
Paediatric Endocrinologist
National Institute of Child Health,
Rafiquee Shaheed Road,
Karachi 75510
Pakistan
Tel: 9201261-4 ext 223,
Mobile: 0333-2184376
Parent delegate: Ghazala Nomani
26 Cedar St.,
Bergenfield, NJ 07621
USA
Tel +1 201 244 9026,
Cell: +1 201647 2296
email: gznomani@aol.com
Panama
Professional contact: Dr. Liliana Angelica Neil Burgos,
Pediatra Endocrinóloga,
Hospital de Especialidades Pediátricas,
Caja del Seguro Social. Vía España, Panamá
Tel. +507 260-1290, Mobile +507 6618 9397.
e-mail: dralilneilb@hotmail.com
Parent contact: Kathia Díaz Arias
San Miguelito Samaria, Sector 4b, casa 161
Panama, Tel: +507 273 9591
e-mail: angeldavid134@LatinMail.com
Paraguay
Professional Delegate: Dra Maria Beatriz N.P.
de Herreros
Domingo Portilo 1508
C/- Prof Fernandez
Asuncion
Paraguay
Tel: +595 21298564
Fax +595 21205719
email: Maranp-4@hotmail.com
Parent Delegate: Dr Alberto Benitez
Dir: Cruz del Defensor
c/- Denador Flecha-Luque
Paraguay
Cel: 0991 317225
Tel: 595 21200163
Tel: 595 21 644415
email: abovo@rieder.net.py
Peru
Professional delegate: Dr. Alberto Teruya Gibu,
Av.Iquitos 293 La Victoria,
Lima-Peru,
Tel. +51-1-4248007
email: a.teruya.gibu@gmail.com
Parent delegate: Rosalva Espino Moscoso
José Pardo 159, Urb. Astete,
San Miguel
LIMA,
PERU,
Tel. +51 1 4206367
email: respinomoscoso@gmail.com
Philippines
Parent delegate: Isabel Gonzalez
Camiguin St. Vincent Heights
Lanang, Davao City
8000 Philippines
Contact Numbers : 0917 271 5994 or 0928 268 2556
Email: izziegonzalez@hotmail.com
Portugal
Professional delegate: Drª Clara Loff
Hospital D. Estefânia in Lisbon,
Tel. +351 939 290 679
email: claraloff@gmail.com
Parent delegates: Paula Cristina de Sousa
Raimundo Barreiro Rebelo
Rua Cidade de Cabinda, nº 22 - 6º
Esq.1800 - 080
LISBOA,
PORTUGAL
Tel. +351 218 536 698,
+351 967 617 824+351 937 617 824,
email: pequenucha@sapo.pt
Puerto Rico
Professional delegate: Alberto Santiago Cornier, M.D. Ph.D. Ponce School of Medicine
Genetic Division,
P O Box 7004
Ponce PR 00732,
Puerto Rico
Tel. +1 (787) 840-2575 ext. 2218/2213/2156
Fax: +1 (787) 840-5698
Professional Delegate: Monica Valentin Figueroa, MA
Psicologa Escolar
Direccion: Bless Therapy Place
826 Ave San Patricia Urb Las Lomas
San Juan PR 00922
Tel: 787 240 2772
email: mvalentinf@gmail.com
Parent delegate: Elsa Alago
Urb Paseos Reales
41 Calle Alarcon
San Antonia
Puerto Rico 00690
Mobile: +1 (787) 312 7950
email: ealago13@gmail.com
Qatar
Parent & Professional delegate: Maysa Serhan MD,
Al Ahli Hospital,
QGDMC ,
Doha
Tel: clinic ; 0097444082416
cell phone; 0097433002044
emails: maysaserhan@hotmail.com
Address : Al waeb Str.Les Roses 1 ,
Villa 82
Doha - Qatar
P.O.Box : 25959
Russia Federation
Professional delegate: Dr Elena Bogova, PhD
Institute of Pediatric Endocrinology
Dm Ulyanova Str 11 Moscow Russia, 117036
+7-925-882-05-48, eabogova@gmail.com
Rwanda
Washington Clark Hill, MD, FACOG
Duke University School of Medicine
Department of Obstetrics and Gynecology
Maternal-fetal Medicine Instructor
Duke University Medical Centre
Kigali
Rwanda
email: dr.washingtonhill@gmail.com
Saudi Arabia
Professional delegate: Dr Abdulmoein Eid Al-Agha
Associate Professor of Paediatric Endocrinology
King Abdulaziz University Hospita
Paediatric Dept
P O Box 90215
Jeddah 21589
Saudi Arabia
Fax: +966 2 640 3841
+966 2 6408353
email: aagha@kau.edu.sa
Singapore
Professional delegate: Dr Warren Lee
Endocrinologist
Tel: +65 6235 3678
Parent delegate:
Guilad Kahn
22 Jalan Sejarah
Singapore 299068
email: gk@guiladkahn.com
Slovakia
Professional Delegate: Dr Ludmila Kostalova
Limbova 1, 833 71.474
email: jistakiva@dfnso.sj
Parent delegate: Maria Benedekova
Alderova, 12,040 22 Kosice
Slovakia
Tel: +421 948 511729
email: benedekova@pwsyndrom.sk
Slovenia
Professional delegate: Dr. Primoz Kotinik, MD, PhD
Dept of Endocrinology, Diabetes & Metabolism
University Children's Hospital
UMC Ljubljana
Bohoriceva 20
Sl-1000 Ljubljana
Slovenia
Phone: +386 1 522 9255
email: primoz.kotnik@mf.uni-lj.si
Parent Delegate: Tina Volk
Stranska pot 9
1000 Ljubljana
Slovenija
Tel: +386 31 721 702
email: tinka.vovk@gmail.com
Parent Delegate: Tina Volk,
President of Slovenia PWS Association
SPINE Foundation (Argentina)
Jorgelina Stegmann, MD
Laprida 2080, C1425EKV
Buenos Aires
ARGENTINA
Phone: (+54) 011-4806-7995 / 4807-5048
Thailand
Professional delegate: Duangrurdee Wattanasirichaigoon, MD
Faculty of Medicine Ramathibodi Hospital,
Department of Pediatrics,
270 Rama 6 Rd.,
Bangkok 10400 Thailand
Tel +66 2201 2782,
fax +66 2201 1850
email: radwc@mahidol.ac.th
Parent delegate: Sontaya Kanjanathanalert
1703/105 Nunthawan House
Aomnut 44
Banchak Prachanon
Bangkok 10260
Thailand
Tel: +66 81 828 6181
email: sk.sontaya@gmail.com
Parent delegate: Preeyathida Gherdchukeadsakui
9/417 Sungsitnivrt House
Chockchai 4 soy 50 Ladprow Rd
Ladprow
Bangkok 10230
Thailand
Tel: +66 81 646 3122
email: preeyachon(at)gmail.com
Further parent contacts:
Vorasuda Jongwattanapaisal
e-mail: pinkpreaw@hotmail.com
Lenka Ruston e-mail: lenka.ruston@hotmail.com
Tunisia
Professional delegate: Dr Ridha M'RAD
Professor in Human Genetics
Dept of the Congenital and Hereditary Diseases
Charles Nicholle Hospital
Bab Soika 1007
Tunis
Tunisia
Phone: 002 1622 589536
email: rmrad@yahoo.com
Turkey
Professional delegate: Prof.Dr. Koray Boduroglu
Hacettepe University Faculty of Medicine
Department of Pediatrics,
Division of Genetics
06100 Sihhiye,
Ankara, Turkey
Fax: 0090 312 3115522,
Tel: 0090 312 3051173
email: kbodur@hacettepe.edu.tr
Uganda
Professional delegate: Dr. Edison Arwanire Mworozi MBChB, M MED
Senior Consultant Paediatrician/Honorary Lecturer Clinical Head
Department of Paediatrics abd Child Health
Mulago Hospital/
Makerere University Medical School,
P.O. BOX 7072,
KAMPALA -
UGANDA
Tel: 256-41- 542766/ 531875 (Office)Fax: 256-41-534037, Mobile: 256-772-619355
email: arwanire@yahoo.com
email: mworozi@chs.mak.ac.ug
Ukraine
Professional Delegate: Dr Vira Yakovenko, MD
Crimean State Medical University
Dept of Pediatrics
Asst Teacher
Paed Endocrinologist
54a Lekinsa St
Apt 22
Simferopol
Crimea
Ukraine 95000
Tel: +38 050 82 11 361
+38 063 850 02 99
email: birayakovenko@hotmail.com
Uruguay
Professional Delegate: Dr. Juan Manuel Jones
Ramón Estomba 3577
Prado, Montevideo
Uruguay
Tel: +598 23365066
email: jmjones@montevideo.com.uy
Parent delegate:María Inés Fonseca
Emilio Castelar 4440B esquina Pirán.
Torre CH Apto 502, Barrio Malvín Norte
Montevideo –
Uruguay
Tel: +0598 25227328
Cell. 097095733
E-mail: mariainesfonseca@gmail.com
Uzbekistan
Professional delegate: Shakhrizada T. Sultanova,
Academic Abdullaev Street 56
Tashkent,
Repulic of Uzbekistan
Te. +998 71 269 1668,
Mobile +998 90 315 7338
email: sultanova_69@meil.ru
Venezuela
Professional Delegate:
Parent Delegate: Alicia Magdalena Turio de Borga
Edificio Onix Piso 1 Oficina 11
Avenida Sojo ConA Avenida
Venezuela
El Rosal Caracas 1060
Venezuela
email:aliciamtborga@gmail.com
Tel: (58212) 754.0353
Vietnam
Professional delegate: Prof. Nguyen Thi Hoan
Head of Endocrinology-Metabolic-Genetic Department,
18/879 La Thanh - Dong Da
Hanoi,
Vietnam
Tel. +84 4 7752910,
Fax +84 4 7754448
email: Hoandung@hn.vnn.vn
Dr. Duong Chi Vuo
Head of Dept of Endocrinology, Metabolism & Genetics
No 18/879 La Tanh Road
Dong Da District
Hanoi
Vietnam
Tel: (84) 0900 424 2010
ailto:dungvu@nhp.org.vn
Yemen
Professional delegate: Ahmed Al-Shehari MD
Pediatric Consultant,
Head of Pediatric Departement in Thamar University,
Coordinator for Control Genetic Disease in Yemen,
B.O. BOX ;- 12715
Sanaa -Yemen
Tel: 00967711655660
email: shehari250@yahoo.com
Parent delegate: Yasser Abdurazak Derhim
Yemen-Sana'a-Hada'a Street
Mobile No:+967-71410700
email: yasserderham@yahoo.com